Sharing Your Story
Unfortunately, Gaucher disease has received relatively little public attention over the years. Raising awareness about the disease can help provide valuable information and support to healthcare professionals, patients, and their families.
To learn how to share your story with friends, the local media, or large groups, download materials from the Making a Difference packet. These materials below contain information on the facts and figures about Gaucher disease, tips on public speaking, a PowerPoint® presentation, and guidelines for interviews with members of the print and broadcast media.
Make a Difference Materials
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Lysosomal Storage Disorders
Gaucher disease is one of more than 40 rare inherited genetic disorders classified as a lysosomal storage disorder (LSD). Individually each LSD is relatively rare, but grouped together they affect about 1 in every 7,700 babies born. Learn more about Lysosomal Storage Disorders »
Gaucher Registry
For more than a decade, the Gaucher Registry has been a global resource to the medical and patient communities, helping to improve outcomes in patients with Gaucher disease. Learn more about participating in the Gaucher Registry »