Quality of Life

Quality of life is a major concern for people with Gaucher disease. Physicians can measure quality of life on a consistent basis using well-established methods, such as a short questionnaire (called “SF-36®”) to help evaluate the impact of Gaucher disease on an individual’s life.

Gaucher Registry

For more than a decade, the Gaucher Registry has been a global resource to the medical and patient communities, helping to improve outcomes in patients with Gaucher disease. Learn more about participating in the Gaucher Registry »