Sharing Your Story

Unfortunately, Gaucher disease has received relatively little public attention over the years. Raising awareness about the disease can help provide valuable information and support to healthcare professionals, patients, and their families.

To learn how to share your story with friends, the local media, or large groups, download materials from the Making a Difference packet. These materials below contain information on the facts and figures about Gaucher disease, tips on public speaking, a PowerPoint^® presentation, and guidelines for interviews with members of the print and broadcast media.

Make a Difference Materials

Making a Difference: Talking About Gaucher (PDF)

Gaucher Fact Sheet (PDF)

Gaucher Poster (PDF)

Gaucher Disease Presentation (PPT)

To view PDFs, you must have Adobe Acrobat® Reader®. To download this software for free, click here.