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Related Links The links listed below will connect you to sites containing information and support from professional medical organizations specializing in Gaucher and rare disease care and research. European Organization for Rare DiseasesEuropean Platform for Patients' Organizations, Science and Industry (EPPOSI) Gaucher RegistryLysosomalLearning.com Genetic Alliance Health Care Information Resources National Organization for Rare Disorders (USA) National Society of Genetic Counselors, Inc. (USA) |
 Did you know... Gaucher disease is one of more than 40 rare inherited genetic disorders classified as a lysosomal storage disorder (LSD). Individually each LSD is relatively rare, but grouped together they affect about 1 in every 7,700 babies born. Learn more about Lysosomal Storage Disorders  Did you know... For more than a decade, the Gaucher Registry has been a global resource to the medical and patient communities, helping to improve outcomes in patients with Gaucher disease. Learn more about participating in the Gaucher Registry>>  Genzyme USA |
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